young person making music

Personalised Transformation

Families tell us they are tired of new approaches which do not necessarily lead to great improvements in their lives.

The state has not yet found a response to the family experience of impairment and disablement that genuinely helps disabled children, young people and their families be part of their communities and have an ordinary experience of family life.

Personalised Transformation supports personal and system change leading to the development of genuine self directed support. Personalised Transformation is about reducing unfairness, inequality and injustice.

Personalised Transformation provides organisations with the understanding, skills and focus to develop and extend personalisation.  And it provides individuals and groups with the encouragement and confidence to take positive decisions which increase meaning and direction in their lives.

Personalised Transformation brings groups of stakeholders together to work on four key areas:
    •    contribution
    •    reflection
    •    energy
    •    renewal

Personalised Transformation is based on the understanding that we are all of equal value, and we all have a valuable contribution to make. The first step towards Personalised Transformation is to find ways for everyone involved to contribute to the process of change. This is not something that happens as a ‘one off’, rather we have to find ways of working that allow all contributions to shape the different stages of the transformation. By maintaining a focus on valuing the contribution everyone has to make, we give the transformation depth, and increase our chances of success that is sustainable.

Personalisation demands a radical change in relationships. Giving choice and control to one group of people, inevitably means taking it away from others. This is easy to say, much more difficult to put into practice. Personalised Transformation demands high levels of personal and collective integrity. This is made easier by creating a safe, reflective space allowing us to put all contributions into their historical, political, social, psychological and emotional context. This aids our understanding, helps us appreciate the various contributions being made, and reduces the risk of maintaining unhealthy power relations.

The energetic phase of Personalised Transformation is the time for developing and implementing new approaches, systems and tools. Although all our efforts are aimed towards the same end - equality, choice, control for disabled children, young people and their families - we can never predict what the new ways of working will be. Every piece of work depends on the contributions of those involved in it, so every process is inevitably unique.  

Transformation of any kind is hard, and Personalised Transformation is no exception to the rule! We often find ourselves swimming against the tide, being the ones who constantly challenge the status quo. During the stage of renewal we recharge our batteries in readiness for taking our innovations further.  If we miss this stage, our ongoing contribution will be less effective and we face the prospect of personal and collective exhaustion. This is a time to enjoy our achievements; remind ourselves why we are doing the work;  examine our integrity; re-focus on our goals of fairness, equality and justice; and nurture ourselves in readiness for continuing the transformation we have started.

Although it can be tempting to look at this four areas as a linear process where we simply move from one stage to another, the reality is that we have to develop the skills to recognise which of the four areas we need to focus on at any point in time. This is something that happens over time as we develop confidence in ourselves and each other.

Personalised Transformation © 2011 Pippa Murray

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Page last published by Debi

"It's the emperor's new clothes - again! My son is 24 now and we have seen lots of different things come and go. They promise change, but they never deliver on that promise. We struggled when he was little, we are struggling now."
(Parent, 2011)